2019-11-28 15:30 - 17:00 EOS 01.120
In our health care system the current treatment for patients with chronic metabolic diseases is mostly by prescription of medication. Especially for lifestyle related diseases, evidence is mounting that lifestyle changes have a profound effect on disease progression and even can lead to disease remission. Data from a new generation of health sensors lead to new insights in diagnosis and treatment of these diseases. Health and behavioral data are needed for the development of so-called digital biomarkers and digital therapeutics. This data that are partially collected within the ‘traditional’ healthcare setting but more and more by the citizens or patients themselves. To use such data for research a number of questions need to be addressed: how do we collect, store and process personal health data in the appropriate ethical/legal way? What will be the role of the citizen/patient in research? Which role can health data cooperatives or data trusts play? And finally how can new privacy preserving technology help in the organization of personal health data? In other words, how do we enable FAIR-trade of personal health data?